Underlying Ambiguities in Genetic Privacy Legislation
Advances in genetic testing and research are creating increasing concern regarding genetic privacy. Current and proposed federal and state legislation has failed to provide adequate protection due to confusion over the meaning of privacy, inconsistency in the definition of genetic information, and lack of clarity with regard to the role of insurers in a market driven healthcare environment. Drawing on examples of current and proposed legislation, this paper explores these ambiguities with a view toward future health policy alternatives.
White, M. T.
(1999). Underlying Ambiguities in Genetic Privacy Legislation. Genetic Testing, 39 (4), 341-345.